White Plains United Methodist Church, Inc.
Company White Plains United Methodist Church, Inc
Peter & Eloise Walker
Paul and Beverly Boudreau
Mr. larry hollis
Van & Dorri Van Sloten
Tom & Martha Helms
Bill and Patti Crane
Hi! I am participating in the Moving Day NC Triangle Walk to benefit the National Parkinson Foundation on November 2nd, 2013.
The event will take place at Koka Booth Amphitheatre (Cary, NC) and will be a fun-filled, family-friendly event for all ages and abilities. We will be able to enjoy a variety of movement activities--yoga, dance, Pilates, Tai Chi, stretching and much more--and celebrate the importance of movement in our lives.
Please consider being a part of my team or sponsoring me, and I encourage you to get your friends, family and coworkers involved.
Our family was like many other families in the Research Triangle Park area. My wife was busy homeschooling our children—four, including an infant—and I was an up-and-coming software development manager at a prominent Research Triangle Park company. We were active at church and involved with various Bible studies and community organizations. I enjoyed outdoor physical activities, including running 30-40 miles each week, weight-lifting, and playing tennis and other sports whenever I had the opportunity. Images of retirement, old age, or disease and disability never entered our minds.
Our journey with Parkinson’s Disease started more than 14 years ago. I was diagnosed at the ripe old age of 38, and that day—September 13, 1999—confirmed what my wife had suspected for a while. The telltale signs were: arm not swinging, foot dragging, shortened gait, stuttering and slurred speech, expressionless face, and fatigue.
In some sense the diagnosis was a relief, because we at least knew the name of the beast we were fighting. At the moment the neurologist uttered those words to us—“Mr. Schnoor, I’m afraid you have Parkinson’s”—I felt God’s comfort and peace enveloping us.
Since then, the whole family has had to adapt. My wife is a wonderful caregiver, encourager, and motivator, and she provides the support that I need. My children have all been up to the challenge as well. We cook together, clean together, do yard work and gardening together, and play backyard sports together. They cheer me on as I do my Physical Therapy and Speech Therapy exercises and sometimes they even join me.
I participated in the Ceregen-120 clinical trial in 2010, undergoing brain surgery to have a virus implanted. This virus contained a protein that had demonstrated the ability to repair damaged dopamine-producing neurons in the brains of mice. I have not seen any positive effects from the surgery yet, but I tell my friends that I have an enhanced fondness for cheese.
I should point out that being aware of God’s comfort and peace does not mean that the road has been an easy journey. The effects of the disease are, of course, a daily challenge, and the side effects of the medication have been horrific as well.
I personally believe that something good can come out of all of this. I don’t know what it is—and if I had my choice, I wouldn’t have this disease—but I have to trust that God’s plan is bigger and better than my plan.
Raising money for PD research is of huge importance. I don’t want other families to have to go through what my family has endured. I believe there is a preventative cure out there somewhere. The quicker we find it, the better.
Researchers are finding that some of the well-known brain diseases, e.g. Alzheimer’s, Parkinson’s, and Huntington’s, have similarities, so it is possible that research on PD might assist in finding cures for those other diseases, as well.
Thanks for reading this, and please contribute if you feel led.
Why Get Involved
The National Parkinson Foundation (NPF) continues to bring help and hope to the estimated one million people in the United States, four to six million worldwide, who are living with Parkinson’s disease. NPF is the only organization with a singular focus on improving the quality of care in Parkinson’s disease. NPF programs reach more than one million people a year through its network of 39 chapters, 43 Centers of Excellence and 900 support groups. Since 1982, NPF has funded more than $172 million in care, research and support services.
Thank you for helping me reach my fundraising goal to support the vital work of the National Parkinson Foundation.