Marty, Cathi, Sam & Christopher
Mom and Dad
Mitch and Karen Stein and family
Don & Susan Kaletsky
Mr. Robert Edelstein
My wife, Ellie, and I are participating in the Moving Day Atlanta Walk, benefiting the National Parkinson Foundation on November 9th, 2013, as representatives of the Yellow River Center, a non-profit corporation dedicated to providing free or low cost tai chi workshops for people with Parkinson's disease and their caregivers. After Larry was diagnosed with Parkinson's in late 2010, these two organizations--along with the American Parkinson's Disease Association--helped right our sinking ship, and we are proud to be able to give back to the PD community. We hope you will help us fight the good fight against this debilitating disease by becoming a part of our team or sponsoring us.
The event will take place at the Georgia Tech Campus and will be a fun-filled, family-friendly event for all ages and abilities. We will be able to enjoy a variety of movement activities yoga, dance, Pilates, Tai Chi, stretching and much more and celebrate the importance of movement in our lives. Our friends at the Yellow River Center will be offering tai chi demonstrations at the Movement Pavillion, and we hope you will stop by and say hello to them on Moving Day!
Why Get Involved
The National Parkinson Foundation (NPF) continues to bring help and hope to the estimated one million people in the United States, four to six million worldwide, who are living with Parkinson’s disease. NPF is the only organization with a singular focus on improving the quality of care in Parkinson’s disease. NPF programs reach more than one million people a year through its network of 39 chapters, 43 Centers of Excellence and 900 support groups. Since 1982, NPF has funded more than $172 million in care, research and support services.
Thank you for helping me reach my fundraising goal to support the vital work of the National Parkinson Foundation.
My Personal Web Log
My Parkinson's Journey
My primary care doctor and the first neurologist I saw diagnosed me in 2009 with Essential Tremor and told me it didn't matter if it was PD because there's no cure and it was best to delay drug therapy, anyway. What inspiring news!
When the PD diagnosis was finally confirmed in late 2010, I adopted an apathetic attitude because I was not guided otherwise. In April 2012, Ellie badgered me into attending an APDA support group meeting she saw noted on the calendar of our local newspaper, and my life changed.
By happenstance, Bob Wells and Doris Williams from the Yellow River Center were at that meeting pitching a free Tai Chi for Parkinson's pilot workshop, and James Trussell (organizer of the NPF's Southeastern PD Conference) was there giving away "Aware in Care" kits and urging folks to attend the Conference that October, and Physical Therapists Tricia Creel and Doherty Riebesell were there urging everyone to exercise.
The Tai Chi studies cited by Bob and Doris and the inspirational words of our favorite PTs led me to believe there might be things I could do to slow my progression. Later, at the Southeastern Conference, a noted doctor urged us to exercise outside our comfort zone to achieve maximum benefit. And then in November, the Yellow River Center sponsored a retreat that helped me pull it all together and realize I did have some control over what had initially seemed uncontrollable.
These events completely changed my outlook from apathy to hopefulness, and the improvement in my well-being over the past year has been dramatic. I exercise hard and often and practice Tai Chi and Yoga daily. We've been working with Bob and Doris to expand the Yellow River Center's offerings and am about to join their Board.
It took me over a year to find the PD community, and as I connect with PWPs across the country at conferences and through Facebook support groups I'm learning my story is a common one. Some neurologists make their patients aware of exercise programs, support groups and clinical trials, but many - maybe even the majority - do not.
The newly diagnosed depend on the outreach programs sponsored by the NPF, APDA, Yellow River Center and others to spread the word that Parkinson's is not the end of the road, but the beginning of a new journey. PWPs can live well for many years if they take immediate action to strengthen their bodies and minds, and the most important action is to GET MOVING!
A body in motion tends to stay in motion, and a body at rest tends to stay at rest. I hope I see you out there on MOVING DAY!