The D'Allara family
With love, from the Twinnies and Crew
Tricia and Kevin
I, along with my family, am participating in the Moving Day Chicago Walk, benefiting the National Parkinson Foundation on October 20, 2013. Why? My husband, Marty, was recently disgnosed with Parkinson's Disease and the symptoms didn't start with tremors or shaking.
While most people with a reduced sense of smell will not develop Parkinson’s, the majority of Parkinson's disease patients do have reduced sense of smell. Loss of sense of smell is often overlooked by diagnosing physicians as an early sign of PD. There are of course many other reasons a person may be experiencing a loss in sense of smell.
Marty noticed that he had literally no sense of smell - out of the blue. We started waiving everything we could think of under his nose, including Mr. Clean (always reminded him of the jails) and tuna (you know how much he hates tuna), and asking him, "Can you smell that?" around even strong smells like skunk! Unfortunately, he also missed the aroma of bacon, fresh cut grass, and the sweet clean baby smell of our grandson Henry after a bath. Our physician researched and scratched his head for months, ordered MRIs, blood work, and every other test under the sun.
It wasn't until after some covert family conversation that we researched ALL of the symptoms of Parkinson's Disease; loss of voice, loss of facial expression, loss of smell, his writing changed (the law enforcement all caps report writing changed significantly), he walked very rigid, and finally, recently, tremors. The neuro-surgeon who did Marty's back surgery set us up with their in-house specialist for an evaluation; she made the determination of Parkinson's Disease very quickly and has already placed Marty on medication. What's sad is that many of the health issues Marty has had over the last 10 years were more than likely very early symptoms.
We have an incredible support system emotionally, but the kids are all concerned for their strong and indestructable dad. We're tough and we'll get through this, but research and the hope of a cure for Parkinson's Disease continues. With no cure, the medications today only help control most of the symptoms. Every body reacts differently and eventually, the body can become immune to the medications.
Moving Day Chicago is a family walk that will take place at Lincoln Park. We will be celebrating the importance of movement in our lives. Please consider being a part of my team or sponsoring us, and I encourage you to get your friends, family and coworkers involved.
Why Get Involved
The National Parkinson Foundation (NPF) continues to bring help and hope to the estimated one million people in the United States, four to six million worldwide, who are living with Parkinson’s disease. NPF is the only organization with a singular focus on improving the quality of care in Parkinson’s disease. NPF programs reach more than one million people a year through its network of 39 chapters, 43 Centers of Excellence and 900 support groups. Since 1982, NPF has funded more than $172 million in care, research and support services.
Thank you for your help and support.