(Testimonial given at the 2013 MovingDay held in Cary, NC)
I’m Dave Malarkey. I'm a husband, a father, a brother, a friend, a veterinarian, co-worker and scientist - and also a person with parkinson's disease (PWP) and exercise fanatic.
I’ve had PD for over 7 years. A few years ago I didn’t want anyone to know it -Now I want everyone to know and even more than that I want to tell you that WE NEED HELP! HELP finding the cause, finding better treatments, and finding a CURE! And all of you have come through in one way or another - with enormous support, ENCOURAGEMENT and generosity – WE DRAW STRENGTH FROM YOU!
I’d like to thank the organizers for putting together this great event. and also to all of you here, you amazing donors, friends, families, caretakers, medical professionals, volunteers – thank you all for your support and donations. it is an overwhelming response. I know good things will come of this – I can feel it - better treatments, prevention and cure!
After receiving donations from nearly 100 individuals this past year, I am considering a run for Mayor!
A special shout out to my wife Kathy and 3 children – Christine, Matthew and Caroline.
A major shout out to our team, the Young Onsetters Group!!!
Those of us with PD are not much different than everyone else, we just lack a little dopamine in parts of our brain
You see - I’ve come to realize that PD is not a death sentence, it’s a life sentence
A wake-up call, a wake-up call to life. To live life to the fullest!
I am living my life to the fullest. I better appreciate the little things in life: the flowers, the birds, walks with my wife, talking with my children, and random acts of kindness. I also appreciate the bigger things in life: spending time with family, taking vacations, graduations, playing sports, teaching, working, going to church, ... My glass is half full, not half empty. Someday it will be 1/3 full. I focus on the things that i can do rather than what i can't do. I can still make plays in hockey, hit the softball, hit winning shots in tennis, play left field, coach soccer, work, and present at local and international meetings. And i try (emphasis on "try") to play golf.
Now that I have your attention, I want share two golf stories. (What is it about golf – there are more philosophical stories that come from this sport – than any other)
Hole-in-1? I had a perfect swing using my 3 iron, the ball traveled 160 yards bounced twice and rolled 7 more feet and dropped into the cup for a hole-in-one! My son Matthew and I were elated and we jumped for joy on the 18th hole of Knights Play golf course in Apex, NC. This was after my "Mulligan" shot landed in the pond. My brother told me I really had a three. A par. One stroke in the pond, one penalty, and then the "hole-in-onne". I argued that when you take a Mulligan your score starts from zero again. The moral of the story is "It's okay to give yourself a Mulligan and celebrate your little victories!" By the way, my name is permanently engraved on a plaque along with about 30 other golfers who "holed" the 18th at Knight's play golf course. We will never be quite sure how many had "Mulliganned" that hole!
The Blame Game. On another golf outing we were paired up with very nice 75-year-old man. He told us he's been thrilled since turning 75 because he's allowed to hit from the women's tees. He hit every ball far and towards the flag. He had a bogey or par for every hole. As for my game, I was slicing balls into the woods or hooking into the water. I was playing lousy. By the 15th hole I decided to tell the man that my bad golf was probably due to my Parkinson's disease. I've never used that as an excuse before, but I was being outplayed and not doing very well. I said "Sir, i have Parkinson's disease and it appears to be affecting my golf game". Then the man looked at me with a smile on his face and he said "Oh really, I've had Parkinson's disease for the last 12 years!" From then on I don't blame Parkinson's disease. I was never very good at golf, anyway.
for ALL OF YOU OUT THERE WHETHER YOU HAVE PD OR NOT OR you have SOMETHING ELSE I say:
BELIEVE WE CAN ACHIVE A CURE
AND as THE GOOD DR STACY SAYS “BE THERE”, for your family - friends – coworkers, teammates…“BE THERE”,
IN CLOSING, I want to share with all of you a recurrent dream that I have. will you all be a part of this dream? will you help it come true? I dreamt that everyone with PD could dance “normally” and the perfect song was released. Party Rock Anthem - i call it PD rock anthem. lets dance.
----thank you and have a great walk!
My Personal Web Log
PD quotes to live and laugh by"
"PD does not have to stop you from achieving good things in your life." MJF
"The generosity of donors to NPF Moving Day is a reflection of the feelings and love that people have for you, the PD patient, and the hope to develop better treatments, as well as prevent and cure PD in your lifetime." DEM
As a PWP you must strive to "Be there". "Be there" for your wife, "be there" for your children, "be there" for your friends and family, be "there" for work., be there for your teammates. MS, MD
There is a reluctancy or unwillingness to divulge this big secret, as if there may be a mistaken diagnosis. Unknown.
Most PWPs keep it a secret for a long time but then its followed by acceptance and determinaton to pursue whatever it takes to remain as healthy and functional for as long as possible. Unknown.
PD, the gift that keeps on taking. MJF
A life well-lived is demanding and exhausting. MJF
It can't be as bad as the lady who had to give birth to her baby in a tree during a tsunami. -MJF
"Dear Dr Dave, I didn't learn a thing from you, and I don't want to be a vet". -PF, 4th grader.
"if you follow your bliss, you put yourself on a kind of track that has been there all the while, waiting for you, and the life that you ought to be living is the one you are living". - Joseph Campbell
"Life is a road that winds among the hills of time. With every turn in the road, an old view vanishes, a new view appears. Life is a pilgrimage, a passage through eternity, a journey..." -James Dillet Freeman
Once there was a little bunny who wanted to run away. So he said to his mother, "I am running away." "If you run away," said his mother, "I will run after you. For you are my little bunny." ... "If you beecome a bird and fly away from me, ...I will be a tree that you come home to." - "If you become a sailboat and sail away from me... I will become the wind and blow you where I want you to go." -Margaret Wise Brown
Friend: "Yes, I am having both knees replaced so that I can continue bicycling as a hobby."
PWP: Oh, I am having elctrodes implanted in both sides of my brain so that I may continue bicycling as a hobby.
by Dave Malarkey on Sat, May 10, 2014 @ 10:08 AM