Peter B. Wall and Camera Solutions
Mr. ethan shea
In honor of my son Dino Ghilotti
Mr. Rodney Adams
Mr. Kreischer Davis
Will and Monique
Dexter Anthony Morrison
Mr. Aleksandre Vayshelboym
I am participating in the Moving Day Miami Walk, benefiting the National Parkinson Foundation on October 6th, 2013.
The event will take place at Bayfront Park and will be a fun-filled, family-friendly event for all ages and abilities. We will be able to enjoy a variety of movement activities yoga, dance, Pilates, Tai Chi, stretching and much more and celebrate the importance of movement in our lives.
Please consider being a part of my team or sponsoring me, and I encourage you to get your friends, family and coworkers involved.
Why Get Involved
The National Parkinson Foundation (NPF) continues to bring help and hope to the estimated one million people in the United States, four to six million worldwide, who are living with Parkinson’s disease. NPF is the only organization with a singular focus on improving the quality of care in Parkinson’s disease. NPF programs reach more than one million people a year through its network of 39 chapters, 43 Centers of Excellence and 900 support groups. Since 1982, NPF has funded more than $172 million in care, research and support services.
Thank you for helping me reach my fundraising goal to support the vital work of the National Parkinson Foundation.
My Personal Web Log
My story Darren D. Davis-Kandler
We live in an ablest society, where people with disabilities are looked at with pity or morbid curiosity. Disability is a socially constructed word/idea because we live in a society that caters to able-bodied people. We create things with a certain body and/or abilities in mind, like the ability to go upstairs, to drive, to put on clothes. As soon as a body is unable to perform a certain task or do a certain thing, that is what creates the disability, that person becomes disabled, because they're unable to perform these tasks.
My name is Darren Davis-Kandler I am a 41-year-old black man of Caribbean Hispanic decent, gay, and Jewish by blood, recently disabled and a U.S. Army veteran. I embodied all these traits with pride, diligence, vigor and I live life the best way I can despite my disability. I was born on Corn Island, Nicaragua, I lived as a refugee in Costa Rica as a preteen, and I lost my teeth at thirteen years old and had to walk around town for one year because my parents worked from paycheck to paycheck. At age fifteen, my family and me migrated to the United States. I lived on a farm in Kansas; I was an honor student, and a gifted athlete. I graduated in 1992 from Atchison, High School in KS and was offered several athletic and academic scholarships to choose, but a friend told me about the military and its benefits. I chose to join the Air Force but they could not offer me the linguist program I was interested in. The US Army recruiter then contacted me and I was accepted in to he US Army linguist program; however at the time I was not a US citizen so I could not be consider for a Security clearance. I eventually was reclassified to a deadbeat job as a fuel handler on paper this title was my official military job, but I was always assigned to do other more skillful jobs. I was station in Fort Riley, KS at the famous 1/4th Cavalry, I also work at the Division head quarter for the post commander, then relocated to the ? Cavalry Aviation unit. In August 1996 I PCS (permanently change of duty) from KS to Shipton Kaserne/Barracks in Ansbach, Germany, and the unit was 6/52 ADA (Air Defense Artillery). In 1997 I became sick because I was given a high dosage of Rifampin and Ethambutol that almost led to my death, while serving in the field to treat Tuberculosis. In August 1998 I PCS to Forth Hood, TX where I work at the historic 1/9th Cavalry regiment; which was a segregated African American regiment who served with valor and merit during the Indian Spanish American Wars. In 1999 I was honorable discharged from the US Army, and I served one year in the US Army Reserves in Manheim, Germany.
My period in the military permitted me to gain job experience, which facilitated me to attain special skills that endorsed me to work as a contractor downrange from 2001 until 2011. In early 2000 I helped co-found F.R.A. http://frontrowagency.com/ with Ty-rown Vincent in Frankfurt, Germany we do logistics for fashion shows in NYC, Milano, Paris and Berlin to name a few. In December 24, 2004 I visited Phuket, Thailand, on the 26th the Tsunami hit the entire region I was one of the blessed survivors of that disaster. I earned my BS in Business Administration with a minor in Psychology and Spanish from the University of Maryland University College.
In 2009 while working downrange, (Basra, and the city of Babylon Al Hillah, Iraq) I was under tremendous stress, I was diagnosed with PTSD after experiences a sporadic twitching on my left calf. This diagnoses was eventually changed to movement disorder. I visited numerous highly training specialist (Psychologists and Neurologist) at John Hopkins Hospital University and other well-known specialist in Washington DC. Despite the obvious signs, all the doctors I saw during those three years denounced the possibility of me having Parkinson. Every one told me that I was too young to have Parkinson. This continued misdiagnosis led to my rapid declining health; in April 2011 I went to visit a doctor who had offices in Washington, DC and the Tri-State area. On Easter Sunday of the same year I was admitted to Inova Fairfax Hospital in VA, my blood pressure was over 200. I then stayed with my friend Cordell for three weeks because I was not allowed to fly home to Germany until my blood pressure was under control. During this period I was officially diagnosed with Sleep Apnea, a disorder I had developed while in the Army. By the beginning of 2012 my condition worsened and I could no longer travel by myself, put on simple clothes, shoes, carry anything in my hands, stand for over five minutes, get out of bed, stand up from the couch, and dismount a car without falling over. I had completely lost control of my balance, posture and my swagger. On November 7th I visited my former neurologist and as soon as he saw me he apologized and stated that he thinks he and everyone else might have misdiagnose me. He scheduled a DOT test, which identifies the death of dopamine-generating cells located in the Substantia Nigra in the midbrain. On November 8th 2012 I took the test and the following day I was diagnosed with Parkinson Disease. The symptoms that I was experiencing in 2009, the shaking of the left leg, rigidity, slowness of movement, gait, left arm, right tremor leg, made sense then this confirmed with no doubt that I had PD. On the 22nd of November I took another test and I was told that I had classic PD. It was unimaginable to think that I Darren, who ate healthy, workout vigorously, and had no health issues before had PD. However without realizing it my life had already began to changed from the moments the first symptoms start in 2009, and by 2012 when I took the DOT test in Germany was just a guarantee that I was already living with PD and there was no way to change that. In February 2013 I spend one week in the hospital where I was being tested to find the medication that would work for me. I learned that there is so many different types of PD and no one person takes the same type of medication. I live in Florida during the harsh European winter, and commute back and forth to Germany with my husband Sascha. My health has improved since I was diagnosed with PD and after given the proper medication. The funniest changes that I have experienced is that I am given the chance to do whatever I want to do three hours at a time. Sinemet allows me this freedom from 8am to 8pm, if I forget to take my meds, my body will become rigid, my left arm begins to shake, or it will become difficult for me to walk, my steps will be heavy and flat. It's like taking a Molly but the only difference is I won't get high. Sinemet helps me be in control of my life for as long as I need to be active with no time to be tired.
On March 2013 after being on medication for almost a month I went on Holidays with Sascha to Miami I continued to workout, despite the pain, watched my diet. I was determined to start up a clothing line, which would be designed for disabled people, and soldiers with missing limbs. During my misdiagnosis period I found out that it was very difficult to dress and undress myself. I searched on the Internet for clothes that would be easy to put on and take off made me feel independent once more. Well the only thing I could find were clothes that were designed for elderly people and all designed with Velcro. I thought to myself I am young, fashionable and I don't want to wear such clothes, so why not design my own line of clothing, this would give me a sense of independence and give me a source of income. After spending a few weeks in Miami I decided to extend my stay and I was on my own, I was terrified to cross the street, drive, walk, go to the gym, etc. I eventually began to gain my confidence back and with time I felt free and strong. This was a different type of strength something I had never experienced before. I can only describe it like being incarnated into a new body with tremors, but I now have more control of my life than I had in a very long time and I am not afraid anymore, I am fearless. Nevertheless I want to feel and look fashionable despite having tremors, I then decided to create FEARLESS LLC
My story continues
It's made for me."
I am working with Cordell a friend of mine for over 16 years he is the idea man and Maristella who will be doing the adjustment to the clothes. We will work with materials and clothes that already exist these will be adjusted to fit the individual needs we will avoid using Velcro, zippers and buttons as primary entry points.
I live in Florida during the harsh European winter, and commute back and fort to Germany with my husband Sascha. My health has improved since I was diagnosed with PD and after given the proper medication. The funniest changes are that I experience are that I am given the chance to do whatever I want to do three hours at a time. Sinemet allows me this freedom from 8am to 8pm, if I forget to take my med my body will become rigid, my left arm begins to shake, or it will become difficult for me to walk my steps will be heavy and flat. It's like taking Molly addicting with one difference I won't get high and it helps me be in control of my life for as long as I need to be active with no time to be tired.
I hope to make a difference not only in life but also with the life of others. I hope that someone can relate to my life story, and that it might inspire one person who is going through something similar or having a rough time due to a disease or injury. I am thankful to my friends and family for being so supportive and understanding through out this affliction, this has made a better person who appreciates life twice a day, when I go to sleep and wake up.