Patients Me Inc.
Ilene and Keegan
Lee and Anita Adelsberg
I am participating in the Rochester, NY Moving Day Walk, benefiting the National Parkinson Foundation Greater Rochester on Sept. 16, 2012.
The event will take place at Monroe Community College Campus and will be a fun-filled, family-friendly event for all ages and abilities. We will be able to enjoy a variety of movement activities yoga, dance, Pilates, Tai Chi, stretching and much more and celebrate the importance of movement in our lives.
Please consider being a part of my team or sponsoring me, and I encourage you to get your friends, family and coworkers involved.
Why Get Involved
The National Parkinson Foundation (NPF) continues to bring help and hope to the estimated one million people in the United States, four to six million worldwide, who are living with Parkinson’s disease. NPF is the only organization with a singular focus on improving the quality of care in Parkinson’s disease. NPF programs reach more than one million people a year through its network of 39 chapters, 43 Centers of Excellence and 900 support groups. Since 1982, NPF has funded more than $164 million in care, research and support services.
Thank you for helping me reach my fundraising goal to support the vital work of the National Parkinson Foundation
You never know what life's going to throw at you. In general I've been very lucky, I have a great husband, great kids with great significant others in their lives and a pretty good business. Although I started out as a metallurgical engineer, being self-employed has given me the freedom to be flexible with my kids as they grew up. On the other hand, once they were out of the house it seemed like our business work expanded to fill the empty space.
However just about the time Jonathan was graduating high school I started having some problems walking. This was Spring of 2004. My arm wasn't swinging and I had some knee pain but the knee pain eventually went away and while I didn't have pain, my walking got increasingly worse. In August 2005 a neurologist said to me "Parkinson's or MS", he then discovered spinal stenosis and I had surgery on my C3-C7 spine in September 2005. Post surgery I was better but not 100% and tried many different doctors and practioners. The diagnosis came back to Parkinson's in Jan 2007 although the initial meds still only got my walking to 85% of normal. Finally in Jan 2009 I started on Sinemet in combination with other meds and pretty much beleived the diagnosis and got my life back.
Living with Parkinson's is a constant challenge. I must stick to my exercise routine, I must take my meds on time. Getting better is not an option but doing whatever I can to delay getting worse is how I have to live my life. Parkinson's is not just physical, it effects me mentally as well. It is a slowing of the body in every way so when my meds are not 100% I dont' think well in addition to not moving well. There are times if my meds are not at the level I want them to be that I will just sit and wait (typically I'll grab a logic puzzle book). If I'm at work and I'm really bad I won't take calls (or try not to). If I'm out socially and I tell Ron "it's time to go" - he is supposed to understand that my meds are off and I want out of the social scene.
I could go on, but let me conclude by just asking for a small token of support. Support groups are hard to find these days but I do participate with this group in Montour Falls NY (just north of Corning/Elmira) and we are participating in a Moving Day Event in Rochester in September.
The photo is from a 5K "race" that Ron and I did last November at Ilene's insistance. (I don't run but I walk a fast pace) It was fun - my goal was 40 minutes and that's what I did (my practices were closer to 45 minutes)
My Personal Web Log